Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Wednesday, August 14, 2013

Cancer Always Wins: Why I'm A Cancer Cynic

I've always been an optimist.

I don't expect people to take advantage of others - to cheat, or lie, or steal. I know these things happen - but I don't assume that they will. When confronted with evil acts, I wonder what part of their past fueled those actions.

I'm the one who makes the best of what is dealt. Who rebounds quickly to changes. Who others look to to take charge.

I go to bed thinking of the exciting things on my plate the next day. And I wake up and think, "Today. Today will be a great day."

 But there's one thing that I've been cynical about for almost 20 years.

Cancer.

Before I was 9, cancer was the zodiac sign that came after mine. It was a constellation I saw in March. What it became was a death sentence.

My young, vibrant, athletic uncle was diagnosed with leukemia. Acute myeloid leukemia. At 35. He had two young sons, a wife, a career, and supposedly, his whole life ahead of him. He lasted for 354 more days. Which was, apparently, his whole life. I was 10 when he died, and 10 year olds know most of what is going on. And though my parents didn't speak in whispers around us, we were aware of his condition most of the time. When he was in remission, we all went to dinner, and we even went to Vegas once or twice. When he was in the hospital, which was most of that time, we visited him every day. Every day. In traffic. Rain or shine. I did my homework in the car, we ate fast food on the way, and we went every day. So, I felt the ups and downs. I knew when he needed a bone marrow transplant, and I knew when the nurses told my dad he didn't qualify as a donor. I knew when he had a stroke, and I knew when he didn't seem to recognize me. I watched a person wither away when I was 10.

Cancer was a bad word in my head after my uncle died. Death was now everywhere. I circled the day he died on every calendar I owned for years afterwards. And I knew that a battle against cancer couldn't be won.

Ten years later, my grandmother told us she had breast cancer. It turned out that she had been ignoring a hard lump in her breast for months and, like most women her age, never thought about getting a mammogram. She underwent chemo and radiation and went into remission. She was in remission for so long, that I was sure I'd found a new perspective on cancer. Three years later, she started getting forgetful, and we thought she was developing dementia. She would say, "I just don't feel like I'm normal. Something is wrong!"

It turns out, her cancer had come back with a vengeance. She and my grandfather celebrated their eighty-first birthdays together with a family dinner in August. Her cancer was officially diagnosed as active the next week. By Thanksgiving, she'd be gone.

Her cancer had metastasized to her brain and was affecting her memory. So, she began radiation. It was very hard on her and she went from an extremely active octogenarian to a feeble woman in a wheelchair. She had no short-term memory, and couldn't control her bodily functions any longer. On Halloween, my dad called me crying and said that the latest scans showed her spine was riddled with tumors - at least 20 of them. She was no longer able to make decisions for herself and we decided to try more radiation. Three weeks later, it was clear that wasn't working. We took her home for hospice care and she died the day before Thanksgiving.

Cancer had won again.

Four years ago,  I started seeing a therapist who changed my life. About a year into our relationship, she started forgetting things I had told her; asking who people were when I told a story. She was diagnosed with brain cancer shortly thereafter. I continued to see her for 4 months, even as she started wearing colorful head scarves, and I had to repeat my stories. Eventually, she couldn't make it into the office anymore and she invited me to a session at her home. After that memorably awkward appointment, I stopped going to therapy. She called, and I feigned busyness. She was still very important to me, but it was getting too hard to watch her decline and I knew what was going to happen. What always happens. Two months later, I received a call from her daughter with the news and an invitation to her funeral.

Cancer for the win.

Last December, after my sister's birthday dinner, my grandpa told us that he was diagnosed with lymphoma. Diffuse large B cell lymphoma. A particularly aggressive form of non-Hodgkin lymphoma. He did one round of chemo, then another. His latest batch of chemo caused him to become muddled. He couldn't remember things we had told him or who we were. He started to fall down a lot and lost strength in his legs. It also made his diabetes exceptionally difficult to control.

His most recent scan showed that all of his tumors were gone except for one. His doctor said that he could do another round of chemo or he could try radiation, a more targeted approach. He opted for the radiation and started it three weeks after his chemo ended. After one week of radiation, he started to notice new tumors - ones he could see and feel. He told the doctor and the doctor said sadly, "Then...I guess we made the wrong decision with the radiation." As of today, my almost-86-year-old grandfather faces another decision - to do another round of chemo (or maybe as many more as he can handle), or to give up.

He's lived a long life and has plenty of stories to tell. But cancer will still win.

Earlier this year, a friend of mine was diagnosed with breast cancer. At 28 years old. She has been through 2 rounds of chemo, has lost her hair, and about 20 pounds. She lost her boyfriend, her career, and her self-confidence. She had to have her eggs harvested because she will likely go into menopause from the chemo. After the chemo, she will go through radiation, and then a double mastectomy and reconstructive surgery. All before 30.

She may get through this. I say that rationally. But, what do I think will happen? What do I expect to happen?

Cancer always wins.

Some of you may read this and think it's awful. Others will think it's sad. You know what? It's both. Cancer is awful and it's sad. I still have nightmares about my uncle's illness. And when I was a caregiver to my grandma, I would go home every night and cry. When I think of my dad, who's about to lose every member of his family to that bad word, I want to cry now.

My cynicism about this issue doesn't mean I'm not hopeful for a cure. I hope that one day we find something that can beat cancer. I hope that I can stop marking the deathdays on my calendar like I do the birthdays. But until the cure is developed, I don't assume that anyone is going to make it. Because I've never seen it happen.

But I do encourage people to donate platelets and to sign up for the marrow registry. I did both for the first time on the 8th anniversary of my uncle's death - when I was 18. I still make a donation every year on that date. Learn more about and sign up for the National Marrow Donor Program here. I donate platelets at the hospital where my uncle was treated, but you can find more information here on the process and where to donate.

With our help, maybe there will be a day when cancer doesn't win.




Monday, February 11, 2013

Save a Life! Join the National Marrow Donation Program!

There is no cure for cancer, right? Well, for some patients with blood cancers like leukemia and lymphoma, there is. A bone marrow transplant. Donated from a healthy person like YOU. Now, don't freak out - it's not that scary. There are even non-surgical donation possibilities. Even with surgery, you'd be back to normal within 3 weeks. That's nothing - you just saved a life!

If you're still thinking, I'm not sure... think of this: most of the registry is White. If you are Black, Pacific Islander, Asian, Hispanic, or mixed - you can make an even bigger difference. And if you're White, you can still save a life - matches are not based strictly on ethnicity.

It is not a stretch to say that cancer will affect all of us in our lifetimes. Every FOUR minutes, someone is diagnosed with a blood cancer. What if it's YOUR child that needs the transplant? Your mom? Your spouse? What if it's you?

Join today! Be the Match :)
 
 

Monday, May 10, 2010

Happy Monday!

This weekend, I was so productive!! On Friday, I had the day off work and I started cleaning my room - going through my bookshelves, cleaning the closet and rerranging furniture. I also spend a good amount of time lounging with Oliver and catching up on recorded shows. Also, I went to the gym for two hours! When I left, I could feel my butt muscles as I walked. (Which was cool then, not so cool now as I'm super sore.) Friday evening, Adam and I saw Babies. For a movie with no dialogue really, it was pretty entertaining. It was definitely funny; but not ground-breaking.

On Saturday, Amy, my mom and I participated in the Revlon Run/Walk 5K. By participated, I mean I ran...then I walked. :) It was surprisingly hot and I got sunburned (despite my sunscreen!) and my feet are blistered (my running shoes are worn-out), but it was a great race for a good cause! I'm proud that I was able to run at least half of it and that I raised $75 for cancer research and awareness efforts. Afterwards, I picked up one of these awesome tank tops:


Amy and I also decided we want to sign up for the MLB All-Star Game Charity 5K in Anaheim in July. Which, yes, sounds as appealing as a race through the Gobi Desert, but if you sign up before 5/23, it's only $25 and you get this awesome shirt. Join us! :)


When we finally got home (we took the Metro and it was a bit of a disaster), I picked up a salad from Carl's Jr (mmmm the cranberry apple walnut salads are the best) and went home to nurse my blisters. Actually, I was pretty productive then, too! I did more cleaning and organizing, then dyed my hair and proceeded to take the most awesome, relaxing shower ever. I used every mask and scrub I could find and I exfoliated and buffed and moisturized until I shone. :)


I picked up this amazing mask in Rotorua, New Zealand when I was there 2 years ago. I bought it at the Polynesian Spa after soaking in sulfur-scented hot springs. This mask has the incredibly fine and rich mud of Lake Rotorua and colostrum which, if you don't think about it too hard, isn't that gross. You can order your own here or better yet, just go visit NZ and pick some up there! :)

Saturday night, I took my sore, sweet-smelling self over to the home of my lovely friends, Kyle and Lindsay. They just got the cutest Yorkie puppy named Yoshi. Behold, Yoshi!


On Sunday, I went with Mike and Sarah to scout pet adoptions for their next mew. They found two they fell in love with at the Long Beach shelter and we'll be going back on Thursday to snatch them up! Here is a picture of those delightful mews!


Sunday evening, Adam and I went to dinner with my family for Mother's Day. We went to this great restaurant called Creme de la Crepe; they have a couple locations here in the South Bay and they're consistently amazing.

After dinner, I went home and went crazy on the house. I cleaned the kitchen, bathroom and living room. I also finished my room. So, now I have a HUGE pile of giveaway items to catalog before I take them to Goodwill (tomorrow) and a huge pile of trash bags outside my door with no one to take them to the dumpster (Jon's in Mexico). Tonight, I will clear out those piles and tackle the trunk of my car (almost as bad as my room was). I will also attempt to do homework and go to the gym tonight. Such busy-ness. But such satisfaction in cleanliness and productivity!

Also, I'm in love with these shoes :)
They're less than $20 with shipping!
Does someone want to get them for me as 
an early birthday present? I'm a size 7 in mens!

Monday, May 3, 2010

Revlon Run/Walk!



I signed up for the Revlon Run/Walk - which is next Saturday, May 8th in Los Angeles. The RR/W raises funds for women's cancer research, counseling and outreach. These are the beneficiaries for this year.

In late 2008, my grandmother passed away due to complications from breast cancer. In 2005, a friend of mine was diagnosed with ovarian cancer and had to have her ovaries removed - at the age of 21. Even if you don't feel like you are affected by cancer, chances are you will be.

Here is the link for my fundraising page - please donate whatever you can, every little bit helps! My current goal is $150 and I have $50 so far as well as some offline pledges. Of course, 100% of your donations are tax-deductible!

If you donate, send me an email or leave me a comment and I will send you a handmade thank you package.

And if you're in the LA area, sign up to participate next Saturday!

Tuesday, November 24, 2009

The World Keeps Turning

What a busy, busy time it's been! And a happy one! And a sad one.

Busy, first: The holidays always seem to hit me all at once and suddenly I have to buy lots of little presents for my parents and sister, a few for other friends and my babysitting kids, as well as 4 large presents for Adam, Jon, Mike and Sarah. I also have school, which I have year-round, but that extra time seems so precious at this time of year. My babysitting schedule is on fire and my etsy shop is picking up steam, too. Plus, I have a craft show the 2nd week of December and I'm trying to make new cards and repackage old ones. Jon's dad is coming to town in mid-December so we're trying to tidy the house and schedule carpet cleanings, so he doesn't think know that we're slobs. Don't forget work 8-5 everyday and all those errands that just come with being a grown-up. Whew! I'm pooped just thinking about everything I have to do.

Most of those things are great, though. I like being busy and having a full planner. I love spending time with my babysitting boys and making cards is obviously something I enjoy as well! I'm even starting to get back into knitting. By back into it, I mean that I briefly learned how to do it last year and then promptly got discouraged and stopped. However, last Sunday Jon and I went to an event called the Hella Hipster Hoedown at the Urban Craft Center in Santa Monica. There was music, free screenprinting, craft booths, and... a knitting crash course! So, we did that and got totally caught up in it (we were late for my mom's birthday dinner) and before we left Jon bought a set of needles and yarn. Which led to last night, where we're sitting in the living room watching our Monday shows (House and Heroes of course) and Jon is totally knitting while watching tv. I was so proud of him; such an enlightened boy. I wish I had taken pictures, though.

Now for the sad: last year, around Labor day, my grandma Annie found that her breast cancer (previously in remission) has metastasized to her brain. We set her up for treatment and took away her car keys. That was the angriest I've ever seen her. The medicine she was on, however, could cause seizures and we felt it was safer if she wasn't driving. Annie was so independent though and I think we may have broken her spirit a bit when we did that.

On Halloween, after weeks of radiation therapy and optimism, we found out that it had further metastasized and there were now 16 inoperable tumors along her spine. She was not very clear-minded most of the time by this point so it was up to my dad and I to make her treatment decisions.

That's an important point: my grandfather, while incredibly intelligent, had no experience with practical matters like grocery shopping or paying bills, so he was out of the question as her decision-maker. My mom and sister were very helpful during this time, shuttling Annie to bingo games and CVS, cleaning up her house so we could fit the hospital bed, etc. But it was my dad and I who were there everyday and it was I who he talked to about what we should do. I became an expert on Medicare coverage, hospice plans, and her treatment.

After we found out about the tumors along her spine, we decided that she should continue on her treatment in the hopes that she could get better enough to come home and go play bingo. When she was lucid, that was all she wanted to do. The week before Thanksgiving, we decided to enter hospice care and to take Annie home. We set up a 24 hour home health aide to live with her and we bought tons of supplies. She came home on the Friday before Thanksgiving. My mom's birthday was on Sunday and I still feel badly that we didn't do much to celebrate it. On Monday, Annie died in her living room with my grandpa, dad, her nurse and I around her. My mom and sister would arrive about 10 minutes later. 

I've lost loved ones, but I had never watched someone die. It's peaceful and violent at the same time. Most of all, it's incredibly sad. Dying at home adds more strangeness to the story because I then had to call the Fire Department to come and verify the DNR and to make sure there was no foul play. I had to call her doctor who spoke to the firemen and told them this was expected. Lastly, I had a surreal conversation with the funeral director where they basically had me fill out the death certificate over the phone. It was a rehash of her life while I sat next to her lifeless body.

Because she died the Monday before Thanksgiving, we had to wait an entire week for the service. That time in between was a morbid mix of preparing for Thanksgiving while writing obituaries, planning headstones, sending announcements and notifying neighbors.

Today is one year since she died. In a few minutes, it will be exactly one year. This Thanksgiving will be easier than last, but I know it will always be strange to gather as a family without her.

Yesterday, my good friend Kristine called me and as soon as I picked up the phone, I knew that her grandpa had died. She held it together on the phone and said she just wanted to let me know. We talked a bit about how unhappy her boss was about this timing (she works in retail) and then we hung up. I knew she was home with her family and I felt like I had to do something. I went to Trader Joe's and Barnes and Noble to get her flowers and a distraction basket filled with cookies and candies and books. When I took it to her house, we kept crying and hugging, crying and hugging. So often, "I know how you feel" is an empty phrase, uttered by people who don't know what else to say. But I did know and she knew that and I think it made her feel a little better.

So, today my dad and I will work, like every other day. At lunch time, after we go to the bank and the post office, we will go to the cemetery and leave a white rose each for my grandma and my uncle - just two rows apart. And tonight, we will go Christmas shopping. Because the world keeps turning.

Pictures:
My babysitting boys supporting their team!
My grandpa, grandma, myself, and my sister at Carlsbad Caverns in 1995 or so.
My grandma and John Wayne - she kept that picture in her purse for 40 years.
Annie in her 20s.
Annie at my sister's graduation in 2007.
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